Tuesday, September 30, 2008

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Sunday, September 28, 2008

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Wednesday, September 24, 2008

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SUPPORT THE MILITARY FAMILY AUTISM EQUALITY ACT

Autism Society of America President and CEO Lee Grossman joined Congressmen Jim Moran (D-VA) and Jeff Miller (R-FL) last week as they announced new bipartisan legislation that would help military retirees get health care coverage for autism therapy at a Capitol Hill press conference.

“The Autism Society of America strongly supports H.R. 6930, the Military Family Autism Equality Act, which would provide quality care to families that have made tremendous sacrifices for our country,” said Grossman. “It also sets an example for insurance companies in the private sector, an important step toward getting all families and individuals affected by autism the appropriate, medically necessary care they need.”

As you know, ABA therapy has been shown to be effective in treating individuals with autism, and reducing overall lifetime costs. Unfortunately, the military retiree health program does not provide coverage for ABA. This policy leaves approximately 8,800 children with autism of military retirees without access to needed care.

The Military Family Autism Equality Act would correct this problem by allowing military retirees to receive coverage under the Department of Defense’s Extended Care health Option (ECHO). The ECHO benefit provides up to $2,500 per month with a maximum of $30,000 per year for this important therapy.

We need your help to get this important legislation passed. Send a letter to your representative asking him or her to cosponsor H.R. 6930, the Military Family Autism Equality Act.

Sincerely,
The Autism Society of America

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Monday, September 22, 2008

NAMI 2008 RESOURCE GUIDE

NAMI UPDATE RECEIVED 09-22-08

Voting is the foundation of democracy. Every vote counts.

In 2000, President George W. Bush won the presidential election by winning in Florida by a margin of only 930 votes out of six million cast in the state. That win made the difference in the Electoral College.

Deadlines for registering to vote are fast approaching. You can register to vote online today through this newsletter. Please be sure to check your state's deadline. Absentee ballots involve different procedures with later deadlines. For separate applications and easy- to-follow procedures on absentee voting, please visit "Go Vote Absentee."

For additional information about deadlines and procedures, NAMI also recommends the League of Women Voters Education Fund's "Vote 411" site.

NAMI has released the responses of presidential candidates John McCain and Barack Obama to a detailed questionnaire about mental health care, along with highlights of the Democratic and Republican platforms.

The positions are offered as part of public education. As a non-profit organization, NAMI does not endorse political candidates, but mental illness does not discriminate between Democrats or Republicans. One out of four Americans is affected by mental illness at some point during their lifetimes.

Be an informed voter! Learn the positions of candidates and parties before you vote.


Help make mental health part of the Election dialog with candidates at the federal, state and local levels. There are many ways to make a difference.

* Learn the issues. Read through NAMI's Policy Action Agenda and pick up useful facts and points to emphasize.

* Ask questions. Attend a candidate forum. Ask candidates one or more open-ended questions related to mental illness.

* Talk with family, friends and others. Educate them. Make sure that they plan to vote on November 4.



Mental Illness Awareness Week (MIAW) is observed October 5-11 and coincides with a televised presidential debate on November 7. One way to raise awareness of mental illness for that week is by submitting letters to editors or op-ed commentaries a week or more beforehand to your local newspaper.

A model letter and op-ed are included among MIAW materials. Please adapt them to include a personal story or observation in your own words and submit them to your own local paper-no matter how small.

This year's MIAW theme is "Building Community, Taking Action." In a democracy, elections are one way that we build community. Taking action means speaking out as part of public dialogue-and voting. The outcome of elections will also help determine actions that will be taken long after ballots are cast.

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Sunday, September 21, 2008

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Friday, September 19, 2008

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Thursday, September 18, 2008

MENIERE'S DISEASE

Recently I found that a friend of mine has a daughter that is suffering from Meneiere's Disease. I was doing some research online and found this printed on Menieres.org I thought maybe someone will find some solace in it. I am looking for forums and support sites that are formed around Meneiere's. If anyone has any to add for me, please contact me @ acunniff4852@gmail.com or add a comment to this post.
Thank you, and enjoy this post:

MENIERE'S DISEASE


Raymond Hines, the owner of Menieres.org, recently had an article published in the Spring 2008 issue of "Hearing Health" magazine by the Deafness Research Foundation. They asked him to write about how he coped with the vagrancies of Meniere's Disease and it is being reprinted here in the hopes it can also help you or at least give your friends and family what it's like to battle with Meniere's Disease.

Coping with Meniere's Disease
I'll never forget the day my world literally turned upside down, sideways, and then some. It was my first vertigo attack and even to this day -- more than ten years ago -- I can vividly remember being thrown into an emotional and physical tornado. I remember the violent spinning as if on a carnival ride gone awry in the worst way possible, the seemingly endless vomiting, and my bewildered mind crying for the spinning to please just stop.
Eight hours later the world finally came to a still and I was able to get back on my wobbly feet. At the time, I shrugged this off to a very bad case of food poisoning, not knowing back then that this was just the beginning of a lifelong struggle with Meniere's Disease. Over the next few years I would be plagued with the Pandora's box of aliments that came with it - violent vertigo attacks, further loss of hearing and balance, loud ringing in the ears, heavy brain fog, and the ensuing emotional trauma resulting from dealing with it.
Dealing with the physical part of Meniere's Disease is bad enough, but dealing with it emotionally can be even harder. Imagine the impending fear and anxiety that pours in when you feel an imminent vertigo attack coming - for many, panic attacks kick in at the same time, further worsening the situation. Imagine lying in bed riding out a battle royale going on in your ears and balance system. You're totally helpless and just trying to hang on for dear life, hoping against all odds that it'd be a mercifully short ride.

Then there's the damaging long-term effects of having to deal with Meniere's Disease that inexorably changes your life. There's the fear of going out into public places, even grocery stores whose floor patterns and row after row of aisles can make one feel woozy due to being overloaded with visual stimulus. There's the need to alter your lifestyle where you can't do the things you used to love and have taken for granted, such as riding roller coasters or even flying on planes for some. Plus, your own mind starts to question a lot of things that come with any life changing event - agony, sorrow, anger, despair, "why me?", and wondering how to deal with this the rest of your life.
It truly does seem like it's the end of the world for many of us that have to deal with Meniere's Disease and it is perfectly understandable given all the horrors that come with it.
Yet, the good news is there's thousands of us out there that have learned to deal with it and even live with it somehow. Although Meniere's Disease is considered incurable, there's lots of ways you can try to manage it the best you can. The key is to keep trying to find that right combination of factors that can help you, be it certain medications, or specific lifestyle changes such as reducing the amount of sodium intake, or even just getting in better shape health wise by exercising more. Due to the idiopathic nature of the disease, many different things work for many different folks, so it's important to explore every option available by doing your research and discussing it with your doctor.

It's also very important to come to terms with your disease emotionally and mentally. Do not let it control your life! At times you can feel all alone in the world with it, so it's essential that you find a support group that can include your friends and family to help you cope with Meniere's Disease. There's also plenty of places on the internet to find a group that suits you and provides you with the support you need. There's no greater feeling than finding a like group of fellow sufferers who understand exactly what you are going through that embrace you, give you a virtual hug, and then share their ways of coping with a chronic illness.
Above all, a positive attitude can go a long way, especially once you're past the "why me" stage. Knowing that you're not going to let this thing beat you and that you're still going to try to live your life to the fullest can be an enormous mental boost in coping with Meniere's Disease.
I'm a good example of a success story when it comes to living and coping with Meniere's Disease. Early on, it was a big struggle trying to learn how to deal with it mentally and physically. I was mired in a period of mourning and self-pity and I was letting the disease dictate my life. I even almost lost my own business due to an inability to run it. Fortunately, I decided to plow forward with my life and take it back. My doctor and I researched and found the best ways to control my symptoms, I changed my attitude to one of "I cannot" to "Do the best I can", and as with my profound hearing loss since birth, treated Meniere's Disease as just another obstacle to work around. As a result, my life is as normal as it can be, my business as flourished, and more importantly, I live a happy and fulfilling life.
You can do it too! Stay positive, surround yourself with a good support group of friends and family (including on the internet), and don't ever give up - you are not alone. Just remember that the down moments you'll encounter with Meniere's Disease are just speed bumps in the road of your life.

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Wednesday, September 17, 2008

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Tuesday, September 16, 2008

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RESPONSE FROM BARNEY FRANK, MASSACHUSETTS

September 16, 2008


Ms. Ann Marie Cunniff
13 Norton Glen Road, Apartment 69
Norton, Massachusetts 02766

Dear Ms. Cunniff:

Thank you for contacting me with your support for H.R. 1424, the
Paul Wellstone Mental Health and Addiction Equity Act of 2007.
I cosponsored the bill, and was pleased to join with my colleagues
in voting for it when it was passed by the House. With the House
having approved this long overdue legislation, I will continue to do
everything to ensure that mental health parity is mandated.

BARNEY FRANK

BF/JN



In order to ensure that my office is able to record incoming communications
properly, please use the "email Barney Frank" link at the top of the home page
(http://www.house.gov/frank/) underneath my signature if you wish to contact me
again.

HEALING WITH EFT

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Monday, September 15, 2008

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Sunday, September 14, 2008

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Saturday, September 13, 2008

NAMI UPDATES

A Medicare card, with several areas of the car...Image via Wikipedia Information received from Nami.Org for September 08

We are now closer than ever to ending insurance discrimination in health insurance, for individuals living with mental illness and their families. NAMI is working closely with friends in the House and Senate, Senators Domenici, Kennedy and Enzi, Representatives Kennedy and Ramstad to enact legislation requiring health plans to cover treatment for mental illness on the terms and conditions as all other medical conditions equally.

While this effort to hold private sector health plans accountable moves forward, NAMI achieved another major victory with passage of parity in the Medicare Program. Since its inception in 1965, Medicare has imposed a 50% beneficiary cost sharing requirement for outpatient mental illness treatment.

This is a stark contrast to the beneficiary cost sharing requirement for all other outpatient medical services of 20%. In other words, when a Medicare beneficiary has a visit for diabetes or a heart condition the co-pay is 20%, but for depression or bipolar disorder, the co-pay is 50%. This is
discrimination that must end.


In July, Congress overrode the President's veto of a Medicare reform package that includes a provision lowering this 50% co-pay requirement to 20% over the next 5 years. This is an enormous achievement for NAMI that will have tremendous benefit for Medicare beneficiaries living with mental illness.

NAMI'S advocacy made an enormous difference, both in pressing Congress to address this longstanding discrimination, and in securing support in the House and Senate necessary to finally achieve passage.

We need your continued support to keep providing these and other services to the many people who count on NAMI. It is through donations from you that allow us to fight for these causes. NAMI remains dedicated to the eradication of mental disease and the improvement of the quality of life for all who are affected by these diseases.

Please help NAMI by making a donation today...

Mental Illness affects everyone. It does not discriminate by age, race, gender or economic background. Every day thousands of persons with serious mental illnesses are not able to find the basic services and support necessary to keep them safe and move them toward recovery and a place in the mainstream of their communities. This is simply not acceptable.

People with mental illness deserve access to quality mental health care no matter where they live or what they do. Together we can all remove these barriers.

Please continue to support NAMI by sending a donation either at the Leadership Level of $500.00 or at the level you are comfortble with. A monthly donation of $35.00 will give you a membership to The NAMI Alliance.

Send tax deductible donations to:
NAMI
2107 Wilson BLVD, Suite 300
Arlington, VA 22201
or contact NAMI to give on at NAMI
If your company matches your donations let them know.
You can also make a donation in the memory of a loved one by calling (703) 524-7600
Consider Giving in the workplace through your United Way.

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Friday, September 12, 2008

RAISE YOUR VOICE AGAINST HUNGER

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GULF COAST FAMILIES AFFECTED BY AUTISM

AUTISM TREATMENT NETWORK RECEIVES $12 MILLION GRANT

Thursday, September 11, 2008

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Tuesday, September 9, 2008

MENTAL AWARENESS WEEK

In October Mental Illness Awareness week is October 5-11, check with your local NAMI Sponsor for events that will be planned around this week.

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WILLIAMS SYNDROME

you can play with it...Image by Pensiero via Flickr William Syndrome is a rare disorder caused by missing genes. The disorder which affects 1 in 7500 people has distinctive psychological and physical effects. People with Williams can live full and healthy lives, but they do experience cardiovascular and other physical symptoms related to the disorder. Before 1980, people were considered mentally handicapped but later researchers were able to note, although that had difficulty with math skills, writing, and negotiating space, their language skills were rather good they were friendly, talkative and outgoing. People with Williams are able to maintain intensive eye contact with other people, and can easily engage strangers in conversation. However, these traits can often get them in trouble, because Williams Syndrome patients lack a sense of irony, cannot read facial expressions well, and are unable to see malicious intent.In other words they lack a theory of mind-they are unable to see things from another person's perspective.
To learn more about William Syndrome Go to The Williams Syndrome Association.

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Sunday, September 7, 2008

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Friday, September 5, 2008

Down's Syndrome Association Nepal

Terraced farming on the foothills of the Himal...Image via Wikipedia Welcome to Down's Syndrome Association Nepal
DSA Nepal was founded in May 2006 by Shila Thapa, president of the DSA, relatives and seven parents of children with Down Syndrome. Each parent has experienced horrifying days during the infancy of their child and consequently feel inspired to generate changes in the attitude of society towards children with Down Syndrome.

I worked for 10 years transporting young children with disabilities. The families of these children were dedicated and in love with them, they were all gifts from God. I used to take my children with me on my bus runs and they would ask a lot of questions and I always gave them this straight answer. "We are all different, and in each of us, is a gift from God, look for that in everyone you meet."

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Thursday, September 4, 2008

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Tuesday, September 2, 2008

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