Showing posts with label ODD. Show all posts
Showing posts with label ODD. Show all posts

Monday, July 21, 2008

THIS IS TOO IMPORTANT TO IGNORE:

As an advocate for families of members with disabilities, I received this notice today and it is one that we cannot possibly ignore: Please take action immediately and pass this information on.

Dear Massachusetts Autism Advocate:

With the stamp of his veto this past week, Governor Deval Patrick has once again told low-income children with Autism Spectrum Disorders that they would not be able to receive the intensive home-based services (including ABA and Floor Time) provided under the Autism Waiver program. Governor Patrick cut $1 million in funding from this critical program, even though our children are already underserved by this program! During the initial eleven day enrollment period in November 2007 the families of more than 1,100 Massachusetts children with ASD applied for just 80 slots available under the Waiver. Hundreds of low-income children continue to languish on the waiting list!
It is time speak on behalf of low-income children with ASD living in Massachusetts!

Our state legislature recognized the critical need for funding of this program and budgeted $4 million for Fiscal Year 2009. This would double the number of available slots in the program to 160!!

Governor Patrick needs to be aware that this already underserved population simply cannot afford to be shortchanged again. Every child with autism deserves the opportunity to have appropriate intensive intervention. Their future quality of life depends on it.
How Can YOU Help?

1. Immediately CALL YOUR STATE REPRESENTATIVE AND STATE SENATOR at 617-722-2000 and urge them to support an override of Governor Patrick’s veto of $1 million in funding for the Children’s Autism Medicaid Waiver (Line Item 5920-3010). If you are not sure who your representative and senator are you can find out HERE

2. CALL Speaker of the House Salvatore DiMasi at 617-722-2500 and Senate President Therese Murray at 617-722- 1500 and ask them to support an override of Governor Patrick’s veto of $1 million in funding for the Children’s Autism Medicaid Waiver (Line Item 5920-3010).

3. Forward this email to everyone you know and ask them to MAKE THE CALL too!!

The override CAN BE ACCOMPLISHED, but we all have to get on the phones to our legislators immediately. Today is the day that you can truly make a difference for a child with ASD.

Thank You,

Judith Ursitti
Massachusetts Chapter Advocacy Chair
Autism Speaks

Wednesday, July 16, 2008

SIGNS TEENS NEED SLEEP!

(HealthDay News) -- Teenagers need to get plenty of sleep -- between 8 1/2 and nine hours every night -- to feel good and keep their bodies healthy.

Pay attention to these warning signs
, courtesy of the U.S. Department of Health and Human Services, that you may not be getting enough shuteye:

* Difficulty getting out of bed in the morning.
* Problems focusing.
* Falling asleep at school during class.
* Feeling depressed, irritable, moody or sad.

Last Reviewed 07/14/2008 | Last Updated 07/14/2008

Friday, June 27, 2008

MEDICAID REGULATIONS APPROVED!

Victory on Medicaid Regulations!

June 27, 2008

Last night the Senate gave final approval to a supplemental war funding bill that includes moratoria on regulations that would have severely limited the ability of states to fund critical mental health services through the Medicaid program. The bill now moves to the White House where President Bush has pledged to sign it in to law.

Your Voice Made This Victory Possible!

The voice of NAMI advocates all across the country made an enormous difference in building strong bipartisan majorities against these Medicaid regulations, forcing the Bush Administration to back off of previous veto threats. NAMI is extremely grateful to all those who took the time to write and call over the past four months on this important issue.


A Busy Week Leading Up to the July 4th Recess

The Senate's action last night caps a very busy week in Congress on NAMI's federal legislative agenda. The House passed measures to broaden the scope of the Americans with Disabilities Act and to stop abuse of teens in "boot camp" residential programs. Unfortunately, the Senate failed to vote on a measure that would have strengthened Medicare. Congress has now begun its July 4th recess and will not return until July 8. Click on the links below for details on the actions taken by the House and Senate during this very busy week.

Medicaid Regulations Delayed

Senate Falls Short on Medicare Package

House Passes ADA Improvements Act

Congress Begins Work on FY 2009 Spending Bills

House Approves Measure to Stop Abuse in Teen Residential Programs

Tuesday, June 24, 2008

GREATER BOSTON WALK FOR AUTISM...WE NEED YOU

Register Online for the 2008 Walk!
Visit us online for some exciting announcements and incentives
SUNDAY OCTOBER 19, 2008
At SUFFOLK DOWNS
ROUTE 1A
EAST BOSTON, MA


Kick-Off Reception

You are invited. Join us for a fun, informative and inspirational event featuring special guest speakers at 6:30 pm on August 7th at Café Escadrille in Burlington, MA.

Team Fundraising Incentive

Team captains get ready. The next 4 teams that reach $10,000 in fundraising by August 15th will receive 2 tickets to the game on the Red Sox Autism Awareness Day on September 9th AND participation in our on-field opening ceremony.

Top Team Update: Teamsters Local 25

A HUGE thank you to the Teamsters who held a special Gala for Autism Speaks on March 8th and raised $125,000 for their team.

Purchase Puzzle Pretzels

5% of the proceeds from purchases of Bachman’s special Puzzle Pretzel will be donated to Autism Speaks. These fun and tasty puzzle shaped pretzels are available nationwide. Send the following link to your friends and family to find local stores that carry them:

Take Action for Autism Funding
Click on the link to send your support for a letter currently being circulated by Representatives Mike Doyle, Chris Smith, and Carolyn McCarthy, which seeks $15 million for autism research in the House version of the Fiscal 2009 Defense Appropriations bill, as well as full funding for Fiscal 2009 of the Combating Autism Act.
1. Call your state representative and senator at 617-722-2000. Urge them to support the larger Senate appropriation for the Division of Autism (Line Item 5920-3010).
2. Call the House Ways & Means Chair, Robert DeLeo, at 617-722-2990. Thank him for the increase in funding for the Division’s Children’s Autism Medicaid Waiver and urge him to support the larger Senate appropriation for the Division of Autism (Line Item 5920-3010) in Conference Committee.
3. Call the House Ways & Means Chair, Stephen Panagiotakos, at 617-722-1481. Thank him for his support for the increase in funding for the Division of Autism and the Children’s Autism Medicaid Waiver (Line Item 5920-3010) and ask him to please continue to support this funding in Conference Committee.
4. Pass this e-mail on to anyone you know who would make these calls. Send this to anyone who would dedicate 5 minutes of making these quick phone calls in support that can make a difference. Anyone who lives in the State of Massachusetts: grandparents, aunts, uncles, cousins, neighbors, coworkers, therapists, etc.

Volunteers Needed
Help is needed before the walk, with making phone calls, mailings and more. Contact us if you would like to get involved! 617-924-3300.

Committee Members Needed
We are looking for additional Walk Committee members. If you would like to help plan and implement this year's Walk, please contact us. We especially need assistance with public relations and logistics. Call 617-924-3300.

About the Walk Now for Autism Event

Join Autism Speaks as we tackle autism! Experience the power of thousands united by a single cause by joining Walk Now for Autism. Start a corporate, school or family team today. Walk Now for Autism offers everyone a fun-filled experience with entertainment, refreshments, an autism community resource fair, and much, much more. Be sure to raise $100 to earn your commemorative Walk Now for Autism t-shirt. We look forward to seeing you at the event.

Whether you are walking, forming a team, volunteering, or just passing this e-mail along to your address book, THANK YOU so much for your help.

The Greater Boston Walk Planning Committee

PUSH THE HOUSE TO STRENGTH THE ADA!

June 24, 2008

The House of Representatives is scheduled to vote as early as tomorrow on legislation to expand existing protections under the landmark 1990 Americans With Disabilities Act (ADA). The bill is designed to reverse a number of Supreme Court decisions that over the years that have narrowed the scope of ADA protections in the workplace. For example, in one decision, the Court held that people who take medications or participate in other therapies that "mitigate" or control the symptoms of their particular condition are not covered by the ADA.

Act Now!

Call or email your House member today! Tell them you support passage of the ADA Amendments Act (HR 3195). All House offices can be reached by calling 202-224-3121. Remind your House member of the critical improvements in this legislation for people living with serious mental illness, including:

* Broadened coverage under the ADA. The bill clarifies that Congress intended the ADA to be interpreted broadly rather than narrowly, as the Supreme Court has held.
A revised standard to qualify for protection broader than that applied by the courts.
* The ADA protects individuals who have an impairment that substantially limits a major life activity, who have a record of such impairment, or who are treated as having such an impairment. This bill provides a new, broader definition of "substantially limits" to make clear Congress' intent to reject the narrower standard that has been applied by the courts.
* New standards for "mitigating measures" (measures a person takes to control the effects of a disability) cannot be held against people with disabilities. Many people with mental illnesses have been denied protection under the ADA because they use medication, therapy or other measures to control the effects of their disabilities. This bill would overturn several Supreme Court decisions and provide that people with disabilities will not lose their coverage under the ADA simply because their condition is treatable with medication or can be addressed with the help of assistive technology.
* Improved coverage for episodic impairments. Many people with mental illnesses have been denied protection under the ADA because their impairments are episodic. This bill would ensure that an episodic impairment counts as a disability as long as it would meet the test for a disability when it is active.
* Broader coverage for people who are subjected to discrimination because they are regarded by others as having a disability. The bill makes it much easier for individuals to obtain protection under the ADA by showing that they were "regarded as" having a disability.

Click here
to send an e-mail to your House member

Learn More

View additional information
on the ADA Amendments Act.

NAMI E-News Alerts
are electronic newsletters provided free of charge as a public service. With more than 1,100 state and local affiliates, NAMI is the nation's largest grassroots organization dedicated to improving the lives of people with severe mental illnesses. Contributions to support our work can be made online.