Thursday, July 16, 2009

Rep. Doyle Makes Historic Pledge to the Autism Community

  Autism Votes... It's time for lawmakers to listen. 

Dear Autism Advocate,

You are doing a FANTASTIC job with your calls and we wanted to take a moment to let you know that House Leadership IS listening to what you have to say. You are most definitely making an impact.

Congressman Mike Doyle (D-PA), Chair of the Congressional Autism Caucus, just pledged in a committee markup on comprehensive health care reform that any bill that does not put an end to autism insurance discrimination is unacceptable. Click here to watch Congressman Doyle's opening statement at the committee session.

   

Here is How YOU Can Help:

1. THANK REP. DOYLE! Please send Congressman Mike Doyle one email from your family thanking him for fighting for our children. Thank him for standing up and letting Congress know that health reform that does not stop autism insurance discrimination is unacceptable. You can send a thank you email to Congressman Doyle HERE!

2. FORWARD THIS EMAIL! Ask 20 of your friends to do the same by forwarding this email to them and asking them to take action.


Please stay tuned. Things are moving fast. We have more grassroots fun prepared for you for tomorrow so be on the lookout in your email boxes for the next directions for Speaker Pelosi's office. In the meantime, please remember that we are seeking donations to keep our tv ad on the air in order to keep the pressure on Congress to end autism insurance discrimination. Simply click the button below:


Together we will achieve autism insurance reform for every child with autism in America!


Sincerely,

Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks


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Autism Society National Conference Opens Next Week

The puzzle piece ribbon is used by some autism...Image via Wikipedia

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NEWS

Autism Society National Conference Opens Next Week

The Autism Society will gather the many experts, families, professionals, and individuals with autism who make up the autism community to St. Charles, Ill., next week for the 40th National Conference and Exposition on Autism Spectrum Disorders. Online registration closes Sunday, July 19, so sign up today at www.autism-society.org/conference. Read more ...

Conference Highlights

MedicAlert Foundation and Autism Society Launch New Program to Safeguard Individuals and Families Living with Autism

MedicAlert Foundation International, the leader in emergency response medical information services, has teamed up with the Autism Society to provide protection and peace of mind through a new program, Medic Alert + Safe and Sound®, offered under the respective registered trademarks of the cooperating sponsors. The official launch of the program will take place at the Autism Society’s 40th National Conference at the Pheasant Run Resort and Spa in St. Charles, IL, from July 22-25. Read more …

AMC Sponsors Family Movie Night at Autism Society National Conference

Don’t miss Family Movie Night at the Autism Society National Conference! Sponsored by AMC Entertainment, it offers a great chance to relax as a family after a busy day at the conference. The movie will be a showing of Kung Fu Panda on Thursday, July 23, from 7-9 p.m. in the St. Charles Ballroom.

Conference Symposium on “Science that Makes a Difference”

This year’s Autism Society National Conference will feature the first-ever Science Symposium, on July 23 beginning at 8:15 a.m. The day opens with a panel discussion on how the key institutions that serve our citizens with autism and their families will view progress and challenges for families and professionals in the future, followed by a series of cutting-edge talks with extensive opportunities for speaker-panel-audience discussion. Read more …

IACC Holds Town Hall Meeting at Autism Society Conference

The Interagency Autism Coordinating Committee (IACC) will hold a Town Hall Meeting on July 24, 2009, at 10:45 a.m.-2 p.m. at the Autism Society National Conference in St. Charles, Ill. The town hall meeting is an opportunity to share your comments, feedback and questions regarding services for people with ASD and their families. Read more …

Don’t Miss Sensory-Friendly Showing of Harry Potter

The next AMC/Autism Society Sensory Friendly Film will be Harry Potter and the Half-Blood Prince, July 25 at 10 a.m. local time. We will also be showing G-Force on August 1. Read more …

UFC Legend Randy Couture Fights for Autism

Five-time Ultimate Fighting Championship (UFC) winner, Randy Couture, will fight Antonio Rodrigo Nogueira to raise awareness and support for autism. On Saturday, August 29, Couture will fight at the first Portland UFC event; following the fight he will host a V.I.P. fundraising event called “Natural Understanding” to benefit the Autism Society of Oregon. The fundraiser will be held at the Marriott Downtown Portland Hotel. Read more …

Rocking the Boat for Autism

Five men are rowing up the east coast to make a difference in the lives of people affected by autism. John Lose, Larry Maher, Dan McCann, James O'Donoghue and Ryan Meyer are “Rock the Boat for Autism” - a grassroots nonprofit organization -- who are rowing from Boca Raton, Fla., to Sea Isle, N.J., this summer to raise $250,000  for the Autism Society. Read more …

ADVOCACY

Senate HELP Committee Moves Comprehensive Healthcare Reform

On July 15, 2009, the U.S. Senate Committee on Health, Education, Labor and Pensions (HELP) passed the Affordable Health Choices Act, a comprehensive healthcare reform package, by a vote of 13-10. The U.S. Senate Committee on Finance, which also has jurisdiction over healthcare reform, is expected to release and make changes to its version of the bill in the coming weeks. Read more …

HELP Committee Gets New Ranking Republican; Holds Hearing on Bullying

Representative John Kline (R-MN) became the Ranking Republican on the House Education and Labor Committee. The Committee's Early Childhood, Elementary and Secondary Education, and Healthy Families and Communities Subcommittees held a hearing entitled, "Strengthening School Safety through Prevention of Bullying." Read more …

Medicaid Answers Questions on the American Recovery and Reinvestment Act

The Centers for Medicare & Medicaid Services (CMS) released one of a series of Medicaid Frequently Asked Questions (FAQs) designed to provide guidance on the implementation of the American Recovery and Reinvestment Act of 2009 (ARRA). The FAQs address questions that have been submitted to the ARRA mailbox, CMSOARRAQuestions@cms.hhs.gov. The new FAQs can be accessed at: http://www.cms.hhs.gov/Recovery/09_Medicaid.asp.

Pennsylvania’s SB 850 Budget Bill Risks Autism Services

The political news in Pennsylvania suggests that the House Appropriations Committee may vote Senate Bill (SB) 850 out onto the floor of the House as a "vehicle" for the budget. SB 850 is a bill that passed in the Senate that includes extraordinary cuts to the autism budget. Read more …

Autism Coverage Language Removed from Ohio State Budget

The autism insurance language in the Ohio budget bill, which was included in the senate version, was dropped in the conference committee. Although we were not able to secure the autism insurance language in this budget bill, our voices were heard, and those advocacy efforts will help us in the future. Further updates on insurance coverage for autism may be available when HB 8, which is the original bill that addressed autism insurance coverage, is considered.

RESEARCH

New Study Pinpoints Difference in the Way Children with Autism Learn New Behaviors

Researchers from the Kennedy Krieger Institute and Johns Hopkins University School of Medicine have collaborated to uncover important new insights into the neurological basis of autism. Their new study, published in the journal Nature Neuroscience, examined patterns of movement as children with autism and typically developing children learned to control a novel tool. The findings suggest that children with autism appear to learn new actions differently than do typically developing children. As compared to their typically developing peers, children with autism relied much more on their own internal sense of body position (proprioception) rather than visual information coming from the external world to learn new patterns of movement. Furthermore, researchers found that the greater the reliance on proprioception, the greater the child’s impairment in social skills, motor skills and imitation. Read more …

Mothers of Children with Autism have Higher Parental Stress and Psychological Distress

Researchers at the University of Washington's Autism Center asked mothers about their experiences raising their children, and found that moms of children with autism had higher levels of parenting-related stress and psychological distress than mothers of children with other developmental delays. Children's problem behavior was associated with increases in both parenting-related stress and distress in both groups, but this relationship was stronger in mothers of children with autism. Read more …

EDUCATION

Artist Plans Plein Air Painting Day to Benefit Transition Program

Artist and mother-of-three Nancy Bea Miller is organizing a plein air (outdoor) painting day to benefit Camphill Special School's Transition Program for teens and youth with developmental disabilities. Read more …

CONFERENCES

INDATA Project Hosts Special Pre-Conference on Augmentative and Alternative Communication

The INDATA Project will host a special pre-conference focusing on Augmentative and Alternative Communication (AAC) on Thursday, August 6, 2009, at 8 a.m.-5 p.m. at the Indiana Convention Center, 100 South Capitol Avenue, Room 209, in Indianapolis. This AAC pre-conference is being held in conjunction with the 2009 Statewide Assistive Technology Conference taking place the following day, Friday, August 7. Read more …

'Mini-DAN!' Set for Southern California Next Month

The Autism Research Institute will present a condensed version of the Defeat Autism Now! treatment guidelines, Sunday, Aug. 16, at the conclusion of the 4th Annual "Back to School" Autism/Aspergers Conference, held at the Pasadena Convention Center, 300 E. Green St, Pasadena, CA 91101. Read more …

RESOURCES

Scholarships Available for Special Education Certification

The Institute on Disability at the University of New Hampshire will offer scholarships to a limited number of highly qualified students in its Special Education Teacher Certification in Intellectual and Developmental Disabilities (IDD) beginning fall 2009. Read more …

New Tool to Help Children with Autism Sleep

Researchers estimate that between 40 and 80 percent of children with autism have difficulty sleeping. Difficulty falling asleep, inconsistent sleep routines, restlessness or poor sleep quality, and waking early are just a few of the problems, according to WebMD. The Good Nite Lite offers parents a way to help their kids learn healthy and acceptable sleeping habits that fit in better with the family's normal schedule. Read more …

New Movie Tells Story of Asperger’s Romance

Romance can be risky, perplexing and filled with the perils of miscommunication - and that's if you aren't Adam, for whom life itself is this way. Read more …

Asperger Syndrome and Dating: A Guide for Teenagers

In The Guide to Dating for Teenagers with Asperger Syndrome, Jeannie Uhlenkamp addresses common topics that arise when talking about teens and dating, with a focus on the needs of teens with AS. Using the fictional characters Haley and Jerome, Uhlenkamp presents the information in an advice-column format written in language that resonates with young people. Read more …

A Rare Glimpse of Life with Autism

Have you ever wondered what it would be like to see life through the eyes of someone with autism? Walk a mile in his or her shoes? Diagnosed as an adult, Judy Endow gives you the unique opportunity to do just this through her latest book, Paper Words: Discovering and Living with My Autism. Read more …

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Thursday, July 2, 2009

Autism Society Conference Just Three Weeks Away; Autism Community Mourns Passing of Dr. Ted Carr

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NEWS

Autism Society Conference Just Three Weeks Away

Don’t miss the Autism Society National Conference in St. Charles, Ill., July 22-25. This year’s conference offers many unique opportunities. The Autism Society has invited First Lady Michelle Obama to participate in the July 24 keynote panel on public policy and autism. We have also launched our conference blog at http://autismconference.wordpress.com/. Read more …

Autism Community Mourns Passing of Dr. Ted Carr

The autism community recently lost a great leader, Dr. Edward Carr, who was killed by a drunk driver the afternoon of June 20. Dr. Carr, the Leading Professor in the Department of Psychology at the State University of New York at Stony Brook, was a top advisor to the Autism Society. We are deeply saddened by the loss of our friend and colleague and his wife, Ilene Wasserman, who was also killed in the crash, and we send our thoughts and prayers to their family. Read more …

AMC and the Autism Society Announce Special Sensory Friendly Showing of “Harry Potter and the Half-Blood Prince”

Don’t miss the AMC/Autism Society Sensory Friendly Film line-up this summer! In addition to the July 11 showing of Ice Age: Dawn of the Dinosaurs, due to the large amount of interest in the new Harry Potter movie, we’ll be having a second show on July 25. Now, families affected by autism that might not be able to see a traditional show will have a chance to watch Harry Potter and the Half-Blood Prince on the big screen. We will also be showing G-Force on August 1. Read more …

ADVOCACY

IACC Holds Town Hall Meeting at Autism Society Conference

The Interagency Autism Coordinating Committee (IACC) will hold a Town Hall Meeting on July 24, 2009, at 10:45 a.m.-2 p.m. at the Autism Society National Conference in St. Charles, Ill. The town hall meeting is an opportunity to share your comments, feedback and questions regarding services for people with ASD and their families. Read more …

Tell Congress to Fund Lifespan Respite

Congress will decide on funding for the Lifespan Respite Care Act of 2006 shortly after coming back from the July 4th recess. On July 8, the Appropriations Committee is expected to quickly finish their work on the Fiscal Year (FY) 2010 Labor/HHS/Education appropriations bill. This bill is the opportunity for Congress to fund the lifespan respite care that families need. Read more …

Support the IDEA Fairness Restoration Act (H.R. 2740)

Congressmen Chris Van Hollen (D-MD) and Pete Sessions (R-TX) have introduced the IDEA Fairness Restoration Act (H.R. 2740). This bill is critically important to families trying to assert the rights afforded to their students under the Individuals with Disabilities Education Act (IDEA), one of the key laws governing disability rights and education. Read more …

U.S. House Passes Bill to Expand Autism Treatment to Military Families

On June 25, the U.S. House of Representatives passed legislation expanding services for autism treatment for military families. The National Defense Authorization Act includes an amendment authored by Congressman Joe Sestak (D-PA) expanding insurance coverage for the children of service personnel under the military’s health-care program (TRICARE). Read more …

Congress Continues Work on Health-Care Reform

Congress began its week-long Independence Day recess this week. Health-care reform is expected to take center stage during the June 29-July 3 Independence Day district work period. Read more …

President Obama Announces New Initiatives to Assist Americans with Disabilities

President Barack Obama recently celebrated the 10th anniversary of the landmark Supreme Court decision in the case of Olmstead v. L.C. by launching "The Year of Community Living," a new effort to assist Americans with disabilities. Read more …

New Appointments to the Obama Administration

New leaders have been confirmed in the U.S. Departments of Disability Employment, Labor, HHS, Education and Housing. Read more …

States Take Action to Support Individuals Affected by Autism

New Jersey, Wisconsin and West Virginia are moving forward with new laws that will help individuals with autism and their families. Read more …

RESEARCH

AASPIRE Gateway Project

The AASPIRE Gateway Project is an online research project conducted by the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE). They are recruiting participants with and without disabilities, and participants on the autism spectrum, for a series of continuing online studies on topics such as health care, Internet use, online sense of community, identity, problem solving and perspective taking. Read more …

Parents Key in New Measure to Evaluate Language in Children with Autism

A new parent questionnaire, developed at the University of Waterloo, Ontario, Canada, will help health practitioners to more accurately gauge the acquisition of language skills in children with autism. Read more …

EDUCATION

CDC's "Learn the Signs. Act Early." Launches "Go Out and Play!" Kit

Early educators know the importance of play and that, for a child, to play is to learn. But play also offers an opportunity to observe a child’s development. To help encourage play, the Centers for Disease Control and Prevention’s (CDC) “Learn the Signs. Act Early.” campaign offers the Go Out and Play! Kit for early childhood educators. This free resource offers fun and interactive activities designed for children 3 through 5 years of age, as well as other important information about child development and sharing concerns with parents. Read more …

CONFERENCES

Free Workshop Series in New York City

Resources for Children with Special Needs, Inc., presents What’s Out There and How to Get It, a 2009-2010 free training series for families and professionals needing programs and services for children with disabilities. Read more …

Autism Spectrum Disorders: From Childhood to Adulthood

Autism Spectrum Disorders: From Childhood to Adulthood, a conference sponsored by the Cambridge Health Alliance and Harvard Medical School, will take place November 20-21 at the Boston Park Plaza Hotel. Read more …

RESOURCES

Latest Tool from the Autism Asperger Publishing Co. Helps Outsmart Explosive Behavior

Judy Endow, author of Outsmarting Explosive Behavior, has created a support system, using the visual of four train cars, which has not only helped Judy and her son, but today helps countless individuals on the autism spectrum and their teams of support people. Read more …

Adult Siblings of People with Disabilities Give their Perspective

In the thought-provoking essay collection Thicker Than Water, 39 adult siblings reflect on how their lives have been indelibly shaped by their relationship with a brother or sister with special needs. Edited by Don Meyer, creator of Sibshops and an expert on sibling issues, Thicker Than Water reveals both positive and negative aspects of growing up with someone who might have received the lion’s share of his or her parents’ attention or who now requires extra support as an adult. Read more …

Autism and the Economy

In his new book, Create Your Own Economy: The Path to Prosperity in a Disordered World, economics professor Tyler Cowen highlights the cognitive strengths of autism and what they contribute to the economy. Read more …

Rethink Autism Launches Web Site Empowering Families and Professionals

Rethink Autism, Inc., an educational technology company based in New York City, recently launched http://www.rethinkautism.com/, the first online resource to offer parents and professionals immediate access to effective and affordable treatment tools for the growing population affected by autism spectrum disorders. Rethink Autism’s methods and resources are based on Applied Behavior Analysis (ABA). Read more …

Author Seeking Input from Parents for Book

The Many Faces of Autism is a book in progress that aims to offer a spectrum of advice for the spectrum of autism. Read more … 

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Wednesday, July 1, 2009

Summer Travel tips for families living with autism

Autism Awareness Ribbon, Colorful Puzzle Piece...Image by BL1961 via Flickr

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Autism Society - Improving the lives of all affected by autism
 

Traveling with an individual with autism this summer?


Dear AnnMarie,

A summer vacation can be a wonderful way to relax and recharge. Unfortunately, there are times when it can be stressful for families living with autism. Individuals on the spectrum can find the rigors of travel — noise, crowds, lines, and disrupted routines — difficult.

As the leading grassroots autism organization, the Autism Society wants to help make summer travel a bit easier with these helpful summer travel tips.

It’s another way we’re striving to serve the increasing number of families who are turning to us — as the incidence of autism continues to rise!

Your urgently needed gift during our 2009 Summer Appeal will help us advance more vital autism treatment-guided research, and enhance support strategies to improve the quality of life for individuals on the spectrum.

Thank you again for your support — and have a wonderful summer!

Thank you!

Lee Grossman
President and CEO
Autism Society member since 1991
Parent of a son with autism

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