Monday, December 29, 2008
AUTISM SPEAKS NEEDS YOUR END OF YEAR DONATION TO REACH THEIR GOAL! WILL YOU HELP?
It's not too late to make a year-end tax-deductible donation
to AUTISM SPEAKS.
With your support, we can continue to:
* Fund research into the causes of autism, more effective treatments, and better diagnostic procedures.
* Advocate for insurance reform to help families cope with autism's financial demands.
* Provide services and resources for families living with autism now.
* Raise awareness of autism.
Thank you if you have already made your gift this year.
Friday, December 19, 2008
Recommended reading on the NAMI site
"2008"
Follow the link below:
This is what AnnMarie Cunniff has to say:
Order from the NAMI Bookshelp
to support the cause.
----------------
NAMI
National Alliance on Mental Illness
www.nami.org
---------------
ARE YOU SAD IN THE WINTER?
Not to minimize the impact this disorder puts on people, but just reminding them may ignite a spark bright enough to get them to their doctor and get the help they need. As it says in the article below, some people get relief from a little tanning or some particular lighting, but some may need medication and some extra help through these months.
Seasonal Affective Disorder
The holidays are a celebratory time for most people, but those affected by Seasonal Affective Disorder (SAD) may experience continuing episodes of depression during the late fall and winter, alternating with periods of normal or high mood the rest of the year. While the environment can trigger the disorder in some people, a new study suggests that others may have a genetic predisposition to SAD.
People living with SAD may experience oversleeping, daytime fatigue, and weight gain. Others may show symptoms associated with depression, such as decreased sexual interest, lethargy, hopelessness, suicidal thoughts, lack of interest in normal activities, and social withdrawal. Many people with SAD do not feel “normal” until May.
In the study, researchers observed 220 people, including 90 people without depression and 130 people diagnosed with SAD. In the latter group, seven people had two mutated copies of the photopigment gene in the eye, which helps detect colors. The mutation makes a person with SAD less sensitive to light.
This information one day may be used to predict whether a person may have a higher risk for developing SAD, or whether light therapy will be effective.
While researchers have not identified specific causes of the disorder, seasonal circadian rhythm interruption, as well as changes in serotonin and melatonin production, may also play a role in the disorder.
When seasonal changes trigger recurring mild feelings of depression, some people living with SAD find that light therapy—using bright lamps or scheduling more time outdoors in winter—helps to manage symptoms. If symptoms noticeably affect one’s daily living, he or she should consult a mental health professional who is qualified to treat SAD.
Tuesday, December 16, 2008
FREE ASA PIN WITH YOUR DONATION TO AUTISM
THIS THURSDAY is your last chance to get a FREE Autism Awareness lapel pin when you
make a year end gift to the Autism Society of America to help families living with autism.
2 Autism Awareness Cloisonne Pins
This colorful ribbon pin will tell the world
you care about the growing autism crisis.
It’s yours FREE with your year-end gift
in support of our mission!
Offer ends this Thursday, December 18th.
DONATE HERE
TELL A FRIEND
Please remember that while you help the Autism Society of America to improve the quality of life for individuals on the autism spectrum, you will also get a valuable tax deduction in 2008 to the full extent allowed by law.
Thank you for being such a strong partner in our mission and please be as generous as possible and make a secure, online donation today to get your pin!
Thanks for all you do!
Lee Grossman
President and CEO
ASA Member since 1991
Parent of a son with autism
Thursday, December 11, 2008
YOUR OPINION COUNTS
The ASA is looking for suggestions to be offered to the new White House Team about what benefits are needed to improve the lives of families with Autistic family members. This is what they are saying:
It is time for aggressive action from the grassroots level. President-Elect Obama and the Transition team need to hear from ASA and our community in a VERY BIG way!
Tell the new administration
your ideas for Autism
VISIT CHANGE.GOV
TELL A FRIEND
Please visit the Change.gov Health Care page and advance the agenda to support individuals with autism and their families. Here, there’s a button where you can submit your ideas for change. The more people write in to tell the new administration their autism concerns, the bigger chance we have of improving the lives of all affected by autism.
Click here for some suggested language.
Please pass this information on to family, friends, neighbors and anyone else you know who has an interest in improving the lives of all affected by autism. Then, ask them to go to the site and do the same. Together, we can create positive change!
Sincerely,
Lee Grossman
President and CEO
ASA Member since 1991
Parent of a son with autism
Tuesday, December 9, 2008
HELP KEEP THE RESOURCES COMING!
Every day, NAMI.org provides infomation and support to tens of thousands of individuals, family members and loved ones affected by mental illness.
And every hour of every day, NAMI.org visitors dig down deep and find a way to make an online contribution which helps NAMI continue to be the nation's voice on mental illness.
Every donation, no matter how small, helps NAMI provide real support, to real people.
Friday, December 5, 2008
AUTISM SPEAKS-e-SPEAKS UPDATES
Illinois General Assembly Passes Autism Insurance Bill
In yet another key victory for children with autism, on November 20, the Illinois General Assembly passed Senate Bill 934, an amendment that requires private health insurance companies to provide coverage of evidence-based, medically necessary autism treatments and therapies. To learn more about Senate Bill 934 and to find out what you can do to help the bill become law, click here. To stay informed about 2009 federal and state autism insurance reform legislation, sign up for action alerts here.
IAN REPORTS ON SPECIAL DIET
The Interactive Autism Network (IAN), which collects information via the Internet from families of children with autism spectrum disorders (ASD) throughout the U.S., surveyed parents on the use of special diets as treatment. In this report, IAN researchers share data on what parents have reported about their use of special diets, including the gluten-free/casein-free diet. Read more.
2008 Society for Neuroscience Annual Meeting Spotlights Autism Treatment
Washington, D.C. played host to more than 30,000 neuroscientists from around the world, including many Autism Speaks grantees, for the five-day Society for Neuroscience meeting November 15-19. Amidst many exciting developments in all fields of neuroscience, a theme of treatment of the component features of autism emerged. Read an overview of this year's conference here. Read more about progress in autism brain tissue research with highlights of Autism Tissue Program researcher projects here.
"Train 4 Autism" and Raise Money for Autism Speaks"
Running in a race or training for a triathlon? Join Train 4 Autism and help raise much-needed funds for autism research! Click here to learn more.
Share Your Holiday Tips with Our Community!
In our latest "In Their Own Words" essay, a mother tells how her son with autism spread a message of autism awareness and acceptance by starting an Autism Speaks Student Club at his middle school. Read more.
Share Your Holiday Tips with Our Community!
Do you have ideas or anecdotes that may help other families with autism prepare for the upcoming holiday season? Send them to us at editors@autismspeaks.org. We will include these in our next issue of e-Speaks.
DONATE NOW
CONTACT US
Thursday, December 4, 2008
MEDICAL ALERT INFORMATION
Tuesday, November 18, 2008
WHY DO WE PANIC?
We all carry baggage and sometimes we don't don't know what the price of holding it all in, will cost us, until we are hit with something like a panic attack. Trust me, they are no fun. Be prepared, get informed, and if you do suffer, get help.
Wednesday, November 12, 2008
Medicare Drug Benefit Update: 2009 Plan Year Enrollment Begins
As the 2009 plan year approaches, NAMI is watching closely to ensure that beneficiaries with serious mental illness, especially low-income dual eligibles, are able to maintain continued access to drug coverage that meets their complex treatment needs. Of particular concern are the estimated 1.3 million dual eligibles and low-income subsidy (LIS) Medicare beneficiaries that are being required to switch to different prescription drug plans (PDPs) on January 1. In addition, NAMI is also concerned about the more than 447,000 dual eligibles that are losing “deemed” status in 2009 and must now apply for the Part D LIS program to avoid increased costs next year.
To learn more about the important issue of Medicare drug plan reassignment of dual eligibles and LIS beneficiaries for 2008, click here.
Learn More about the 2008 Drug Plan Options
There are a number of important web-based tools to search available plan options, research whether or not a specific medication is on a plan’s formulary for 2008 – or is subject to an access restriction (placed on a tier requiring higher cost sharing, prior authorization, step therapy, quantity limit, etc.). Most can be searched by zip code to check on availability by geographic region. Here are a few links to these websites:
Centers for Medicaid and Medicare Services
CMS 2009 Plan Finder.
CMS 2009 Formulary Finder
MAP-Rx Information on 2009 Open Season
Information for Dual Eligibles
Mental Health Part D
Access to Benefits Coalition
Friday, October 31, 2008
Monday, October 27, 2008
"USE YOUR BIG BOY WORDS, DENIS LEARY"
Thursday, October 23, 2008
Monday, October 20, 2008
AUTISM SPEAKS AND DANCING WITH THE STARS
Make sure you check out Dancing With the Stars tonight on ABC at 8:00 pm. Then vote for Toni Braxton in support of Autism Speaks. Do your part and vote for Toni.
Tuesday, October 14, 2008
re: INSPIRATION
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Thursday, October 9, 2008
SENSORY FRIENDLY FILMS COMING TO THEATRES THIS WEEKEND
Don't Miss Beverly Hills Chihuahua this weekend.
Wednesday, October 8, 2008
ABC won't air our ad
ABC refused to air the Alliance for Climate Protection's Repower America ad about how oil and coal companies have blocked the country's switch to truly clean energy. Tell ABC to reconsider their decision and air the Repower America ad. http://www.wecansolveit.org/ABC We're working to get 100,000 public comments to ABC before 20/20's next airing. Thank you. |
HOW ARE YOU AFFECTED BY THE MENTAL HEALTH PARITY ACT?
Get the details and find out where you, friends, and family are affected by the passing of this bill.
I was watching Bonnie Hunt today and she had Joe Pantoliano on discussing his battle with mental illness. He is working on a Documentary about his battle and that of others. Watch for it, and go now and see how this parity bill will affect you.
Tuesday, October 7, 2008
PROFANITY IS UNACCEPTABLE IN A CHILD'S VOCABULARY
“F--- You, Mom!” How to Stop Your Child from Cursing in Your Home"
Do we like the same books?
Just a friendly reminder that I invited you to Shelfari. Come see the books I love and see if we have any in common. Then pick my next book so I can keep on reading.
Join me on Shelfari!
AnnMarie
Shelfari is a free site that lets you share book ratings and reviews with friends and meet people who have similar tastes in books. It also lets you build an online bookshelf, join book clubs, and get good book recommendations from friends.
You have received this email because AnnMarie (acunniff4852@gmail.com) directly invited you to join his or her community on Shelfari.
It is against Shelfari's policies to invite people who you don't know directly. Follow this link to prevent future invitations to this address. If you believe you do not know this person, you may view his or her Shelfari page or report him or her in our feedback section.
Shelfari, 616 1st Ave #300, Seattle, WA 98104
Sunday, October 5, 2008
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Saturday, October 4, 2008
Do we like the same books?
I just joined Shelfari to connect with other book lovers. Come see the books I love and see if we have any in common. Then pick my next book so I can keep on reading.
Join me on Shelfari!
AnnMarie
Shelfari is a free site that lets you share book ratings and reviews with friends and meet people who have similar tastes in books. It also lets you build an online bookshelf, join book clubs, and get good book recommendations from friends.
You have received this email because AnnMarie (acunniff4852@gmail.com) directly invited you to join his or her community on Shelfari.
It is against Shelfari's policies to invite people who you don't know directly. Follow this link to prevent future invitations to this address. If you believe you do not know this person, you may view his or her Shelfari page or report him or her in our feedback section.
Shelfari, 616 1st Ave #300, Seattle, WA 98104
Friday, October 3, 2008
Join me
I just used the We Campaign's simple letter to the editor writing tool to tell my local paper about how now is the time create a green economic recovery. Main street needs these jobs. Our climate requires them. It's easy, and I wanted to ask you to take a moment and write one too: http://www.wecansolveit.org/content/speak-out-green-jobs-now/ The We Campaign is a project of The Alliance for Climate Protection -- a nonprofit, nonpartisan effort founded by Nobel laureate and former Vice President Al Gore. The goal of the Alliance is to build a movement that creates the political will to solve the climate crisis -- in part through Repowering America with 100% clean electricity within 10 years. You can find out more at: http://www.wecansolveit.org/ Thanks! |
Thursday, October 2, 2008
CONTACT YOUR CONGRESSMEN
With only 1 week left it is crucial to get information to your congressmen to vote on the parity bill to require plans to cover mental illness and substance abuse treatment on the same terms and conditions as all other illnesses.
Tuesday, September 30, 2008
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Sunday, September 28, 2008
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Wednesday, September 24, 2008
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SUPPORT THE MILITARY FAMILY AUTISM EQUALITY ACT
“The Autism Society of America strongly supports H.R. 6930, the Military Family Autism Equality Act, which would provide quality care to families that have made tremendous sacrifices for our country,” said Grossman. “It also sets an example for insurance companies in the private sector, an important step toward getting all families and individuals affected by autism the appropriate, medically necessary care they need.”
As you know, ABA therapy has been shown to be effective in treating individuals with autism, and reducing overall lifetime costs. Unfortunately, the military retiree health program does not provide coverage for ABA. This policy leaves approximately 8,800 children with autism of military retirees without access to needed care.
The Military Family Autism Equality Act would correct this problem by allowing military retirees to receive coverage under the Department of Defense’s Extended Care health Option (ECHO). The ECHO benefit provides up to $2,500 per month with a maximum of $30,000 per year for this important therapy.
We need your help to get this important legislation passed. Send a letter to your representative asking him or her to cosponsor H.R. 6930, the Military Family Autism Equality Act.
Sincerely,
The Autism Society of America
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Monday, September 22, 2008
NAMI 2008 RESOURCE GUIDE
Voting is the foundation of democracy. Every vote counts.
In 2000, President George W. Bush won the presidential election by winning in Florida by a margin of only 930 votes out of six million cast in the state. That win made the difference in the Electoral College.
Deadlines for registering to vote are fast approaching. You can register to vote online today through this newsletter. Please be sure to check your state's deadline. Absentee ballots involve different procedures with later deadlines. For separate applications and easy- to-follow procedures on absentee voting, please visit "Go Vote Absentee."
For additional information about deadlines and procedures, NAMI also recommends the League of Women Voters Education Fund's "Vote 411" site.
NAMI has released the responses of presidential candidates John McCain and Barack Obama to a detailed questionnaire about mental health care, along with highlights of the Democratic and Republican platforms.
The positions are offered as part of public education. As a non-profit organization, NAMI does not endorse political candidates, but mental illness does not discriminate between Democrats or Republicans. One out of four Americans is affected by mental illness at some point during their lifetimes.
Be an informed voter! Learn the positions of candidates and parties before you vote.
Help make mental health part of the Election dialog with candidates at the federal, state and local levels. There are many ways to make a difference.
* Learn the issues. Read through NAMI's Policy Action Agenda and pick up useful facts and points to emphasize.
* Ask questions. Attend a candidate forum. Ask candidates one or more open-ended questions related to mental illness.
* Talk with family, friends and others. Educate them. Make sure that they plan to vote on November 4.
Mental Illness Awareness Week (MIAW) is observed October 5-11 and coincides with a televised presidential debate on November 7. One way to raise awareness of mental illness for that week is by submitting letters to editors or op-ed commentaries a week or more beforehand to your local newspaper.
A model letter and op-ed are included among MIAW materials. Please adapt them to include a personal story or observation in your own words and submit them to your own local paper-no matter how small.
This year's MIAW theme is "Building Community, Taking Action." In a democracy, elections are one way that we build community. Taking action means speaking out as part of public dialogue-and voting. The outcome of elections will also help determine actions that will be taken long after ballots are cast.
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Thursday, September 18, 2008
MENIERE'S DISEASE
Thank you, and enjoy this post:
MENIERE'S DISEASE
Raymond Hines, the owner of Menieres.org, recently had an article published in the Spring 2008 issue of "Hearing Health" magazine by the Deafness Research Foundation. They asked him to write about how he coped with the vagrancies of Meniere's Disease and it is being reprinted here in the hopes it can also help you or at least give your friends and family what it's like to battle with Meniere's Disease.
Coping with Meniere's Disease
I'll never forget the day my world literally turned upside down, sideways, and then some. It was my first vertigo attack and even to this day -- more than ten years ago -- I can vividly remember being thrown into an emotional and physical tornado. I remember the violent spinning as if on a carnival ride gone awry in the worst way possible, the seemingly endless vomiting, and my bewildered mind crying for the spinning to please just stop.
Eight hours later the world finally came to a still and I was able to get back on my wobbly feet. At the time, I shrugged this off to a very bad case of food poisoning, not knowing back then that this was just the beginning of a lifelong struggle with Meniere's Disease. Over the next few years I would be plagued with the Pandora's box of aliments that came with it - violent vertigo attacks, further loss of hearing and balance, loud ringing in the ears, heavy brain fog, and the ensuing emotional trauma resulting from dealing with it.
Dealing with the physical part of Meniere's Disease is bad enough, but dealing with it emotionally can be even harder. Imagine the impending fear and anxiety that pours in when you feel an imminent vertigo attack coming - for many, panic attacks kick in at the same time, further worsening the situation. Imagine lying in bed riding out a battle royale going on in your ears and balance system. You're totally helpless and just trying to hang on for dear life, hoping against all odds that it'd be a mercifully short ride.
Then there's the damaging long-term effects of having to deal with Meniere's Disease that inexorably changes your life. There's the fear of going out into public places, even grocery stores whose floor patterns and row after row of aisles can make one feel woozy due to being overloaded with visual stimulus. There's the need to alter your lifestyle where you can't do the things you used to love and have taken for granted, such as riding roller coasters or even flying on planes for some. Plus, your own mind starts to question a lot of things that come with any life changing event - agony, sorrow, anger, despair, "why me?", and wondering how to deal with this the rest of your life.
It truly does seem like it's the end of the world for many of us that have to deal with Meniere's Disease and it is perfectly understandable given all the horrors that come with it.
Yet, the good news is there's thousands of us out there that have learned to deal with it and even live with it somehow. Although Meniere's Disease is considered incurable, there's lots of ways you can try to manage it the best you can. The key is to keep trying to find that right combination of factors that can help you, be it certain medications, or specific lifestyle changes such as reducing the amount of sodium intake, or even just getting in better shape health wise by exercising more. Due to the idiopathic nature of the disease, many different things work for many different folks, so it's important to explore every option available by doing your research and discussing it with your doctor.
It's also very important to come to terms with your disease emotionally and mentally. Do not let it control your life! At times you can feel all alone in the world with it, so it's essential that you find a support group that can include your friends and family to help you cope with Meniere's Disease. There's also plenty of places on the internet to find a group that suits you and provides you with the support you need. There's no greater feeling than finding a like group of fellow sufferers who understand exactly what you are going through that embrace you, give you a virtual hug, and then share their ways of coping with a chronic illness.
Above all, a positive attitude can go a long way, especially once you're past the "why me" stage. Knowing that you're not going to let this thing beat you and that you're still going to try to live your life to the fullest can be an enormous mental boost in coping with Meniere's Disease.
I'm a good example of a success story when it comes to living and coping with Meniere's Disease. Early on, it was a big struggle trying to learn how to deal with it mentally and physically. I was mired in a period of mourning and self-pity and I was letting the disease dictate my life. I even almost lost my own business due to an inability to run it. Fortunately, I decided to plow forward with my life and take it back. My doctor and I researched and found the best ways to control my symptoms, I changed my attitude to one of "I cannot" to "Do the best I can", and as with my profound hearing loss since birth, treated Meniere's Disease as just another obstacle to work around. As a result, my life is as normal as it can be, my business as flourished, and more importantly, I live a happy and fulfilling life.
You can do it too! Stay positive, surround yourself with a good support group of friends and family (including on the internet), and don't ever give up - you are not alone. Just remember that the down moments you'll encounter with Meniere's Disease are just speed bumps in the road of your life.
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Tuesday, September 16, 2008
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Your invitation from AnnMarie Cunniff is about to expire
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RESPONSE FROM BARNEY FRANK, MASSACHUSETTS
Ms. Ann Marie Cunniff
13 Norton Glen Road, Apartment 69
Norton, Massachusetts 02766
Dear Ms. Cunniff:
Thank you for contacting me with your support for H.R. 1424, the
Paul Wellstone Mental Health and Addiction Equity Act of 2007.
I cosponsored the bill, and was pleased to join with my colleagues
in voting for it when it was passed by the House. With the House
having approved this long overdue legislation, I will continue to do
everything to ensure that mental health parity is mandated.
BARNEY FRANK
BF/JN
In order to ensure that my office is able to record incoming communications
properly, please use the "email Barney Frank" link at the top of the home page
(http://www.house.gov/frank/) underneath my signature if you wish to contact me
again.
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Monday, September 15, 2008
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Sunday, September 14, 2008
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Saturday, September 13, 2008
NAMI UPDATES
We are now closer than ever to ending insurance discrimination in health insurance, for individuals living with mental illness and their families. NAMI is working closely with friends in the House and Senate, Senators Domenici, Kennedy and Enzi, Representatives Kennedy and Ramstad to enact legislation requiring health plans to cover treatment for mental illness on the terms and conditions as all other medical conditions equally.
While this effort to hold private sector health plans accountable moves forward, NAMI achieved another major victory with passage of parity in the Medicare Program. Since its inception in 1965, Medicare has imposed a 50% beneficiary cost sharing requirement for outpatient mental illness treatment.
This is a stark contrast to the beneficiary cost sharing requirement for all other outpatient medical services of 20%. In other words, when a Medicare beneficiary has a visit for diabetes or a heart condition the co-pay is 20%, but for depression or bipolar disorder, the co-pay is 50%. This is
discrimination that must end.
In July, Congress overrode the President's veto of a Medicare reform package that includes a provision lowering this 50% co-pay requirement to 20% over the next 5 years. This is an enormous achievement for NAMI that will have tremendous benefit for Medicare beneficiaries living with mental illness.
NAMI'S advocacy made an enormous difference, both in pressing Congress to address this longstanding discrimination, and in securing support in the House and Senate necessary to finally achieve passage.
We need your continued support to keep providing these and other services to the many people who count on NAMI. It is through donations from you that allow us to fight for these causes. NAMI remains dedicated to the eradication of mental disease and the improvement of the quality of life for all who are affected by these diseases.
Please help NAMI by making a donation today...
Mental Illness affects everyone. It does not discriminate by age, race, gender or economic background. Every day thousands of persons with serious mental illnesses are not able to find the basic services and support necessary to keep them safe and move them toward recovery and a place in the mainstream of their communities. This is simply not acceptable.
People with mental illness deserve access to quality mental health care no matter where they live or what they do. Together we can all remove these barriers.
Please continue to support NAMI by sending a donation either at the Leadership Level of $500.00 or at the level you are comfortble with. A monthly donation of $35.00 will give you a membership to The NAMI Alliance.
Send tax deductible donations to:
NAMI
2107 Wilson BLVD, Suite 300
Arlington, VA 22201
or contact NAMI to give on at NAMI
If your company matches your donations let them know.
You can also make a donation in the memory of a loved one by calling (703) 524-7600
Consider Giving in the workplace through your United Way.
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Friday, September 12, 2008
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Tuesday, September 9, 2008
MENTAL AWARENESS WEEK
WILLIAMS SYNDROME
To learn more about William Syndrome Go to The Williams Syndrome Association.
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